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What to Know about Brain Tumor Awareness Month 2021

What is Brain Tumor Awareness Month? 

Brain Tumor Awareness Month aims at bringing together the brain tumor community to help raise awareness and shine a light on a patient population that is often overlooked.

Although brain cancer is not as common as breast or lung cancer, the need for new and innovative ways to treat brain tumor patients has never been more critical.

Research suggests that 1.4 million patients worldwide are struggling with malignant brain tumors and that by the end of the year, another 256,000 will be diagnosed with a malignant brain tumor.  

When is Brain Tumor Awareness Month?

Brain Tumor Awareness Month is nationally recognized in the United States during the month of May.

Why is Brain Tumor Awareness Month so important? 

As the current global health crisis continues to shift with the impact of COVID-19, the importance of understanding the impacts of patient care, education and cancer research is becoming more apparent than ever.  

As we look to the future, there is still much more groundwork to be done in discovering new and effective drugs for brain tumor patients, as well as a dire need for continuous education on a multitude of challenges we face when treating brain cancer. 

Brain Tumor Awareness Month is a movement that is wholly dedicated to these efforts and even in the midst of a pandemic, the need to help this patient population is still a top priority.  

How can you get involved with Brain Tumor Awareness Month? 

It’s common and reasonable to feel powerless against a disease like brain cancer. Still, there are plenty of ways to make a positive impact, especially during Brain Tumor Awareness Month. 

Naturally, the focus is on raising as much awareness as possible, understanding that many don’t know about this cancer until they or someone they love is diagnosed.

Here are a few ways you can make an impact this month:  

Spread the word 

Share information about primary brain tumors and secondary brain tumors with your peers. Tell them the stories of those affected, the harsh reality that brain cancer can impact anyone at any time, and highlight how strong and resilient those who have been burdened with this disease are because of their journey. 

Brain Tumor Facts

  • An estimated 84,170 people in the US will be diagnosed with a primary brain tumor in 2021.
  • The median survival for patients with glioblastoma, the most common primary brain tumor, is only 8 months and the five-year relative survival rate is only 7.2%.
  • The survival rate of patients with glioblastoma has not substantially improved in the last 30 years.
  • There is only one FDA-approved drug for glioblastoma with a survival benefit.

Source: Central Brain Tumor Registry of the United States (CBTRUS) 

Make a financial contribution 

Donate to non-profit organizations that conduct clinical research studies like the Ivy Center’s Phase 0 clinical trials, help support families affected by a brain tumor diagnosis through organizations like Gray Matters FoundationStudents Supporting Brain Tumor Research, Ivy Brain Tumor Center and more.  

Support Participating Businesses

Many businesses get involved in Brain Tumor Awareness Month by donating a portion of their proceeds during the month of May to brain cancer research.

If you are local to the Phoenix area, Barrow Neurological Foundation has teamed up with Hensley Beverage Company in a Dine & Donate promotion. Throughout the month of May, patrons will have the ability to purchase featured items at participating restaurants where a portion of the proceeds will benefit the Ivy Brain Tumor Center at Barrow Neurological Institute. As a strategic partner, the Hensley Beverage Company will generously match all donations during the month, up to $15,000! 

Below are a few of the participating restaurants:

Maple & Ash

Maple & Ash will donate $2 from each signature cocktail purchased during the month of May, as well as match the total donation at the end of the month. The signature drink is called Grey Matter and consists of JAJA Tequila, activated charcoal honey, lemon & ginger. 

Vincent on Camelback

Vincent on Camelback will donate $2 from each Smoked Salmon Quesadilla (a fan favorite) purchased during the month of May.

Sacks Sandwiches – Thomas & 3rd Ave

Sacks Sandwiches at 3rd Ave & Thomas will be donating a portion of their proceeds to the Ivy Center for every cold special sold during the month of May and on Thursday, May 27, National Gray Day, they will donate 10% of all sales.

Zipps Sports Grill

Zipps Sports Grill will donate $1 from every 32oz purchase of Michelob Ultra during the Month of May.

Create Your Own Fundraiser 

Facebook Fundraiser

Another easy way to raise funds is by creating a Facebook Fundraiser to enlist the support of your social circle. Here’s how to do it:

  1. Go to https://www.facebook.com/fundraisers
  2. Click “Select Nonprofit”
  3. Search for Barrow Neurological Institute and hit “Enter”
  4. Fill in the details about your fundraiser and upload a custom image if you would like. Please be sure to include “Ivy Center” in the title so the funds raised are directed to the Ivy Center’s clinical trials program.
  5. Set a goal amount and hit “Create.”
  6. Share with your friends and family during the month of May.
How to Create a Facebook Fundraiser

Wear gray 

Encourage your friends, family and co-workers to dress in gray for National Wear Gray Day on May 27 or take it a step further by going gray during the entire month of May to bring awareness to brain cancer and the need for more research.  

You can also show your support by wearing a gray awareness ribbon. When you make a donation of $25 or more to the Ivy Brain Tumor Center for Brain Tumor Awareness Month we will send you a complimentary gray ribbon (as seen below) to pin to your shirt, in addition to a Barrow Brain Pen.

Take part on social media 

Engage with the brain tumor community online. Repost stories, share the hashtag #BTAM and add a Brain Tumor Awareness Month frame to your profile picture on Facebook.  

Join the #BrainTumorTough movement 

While the world is facing unprecedented times, one thing that always holds true is this community’s ability to remain tough and resilient no matter what life throws at them. So our goal in May is to spotlight individuals who represent what it means to be #BrainTumorTough. Whether it’s a patient, caregiver, doctor or nurse, we will be highlighting the many people who even in this midst of a pandemic, remain strong, never lose hope and are brain tumor tough.

Share a photo of yourself flexing with some background on your story and what makes you #BrainTumorTough. Tag us and we will share your story. 

How will COVID-19 affect Brain Tumor Awareness Month efforts? 

In order to maintain the safety of brain tumor patients and their loved ones, many organizations and leaders have continued to shift their awareness efforts online, making it easier than ever to donate, fundraise or participate in special events.

Here’s what a few of the top brain tumor organizations are doing to continue their brain tumor awareness efforts during the pandemic:  

  • Head for the Cure has taken their 5K run/walks and events virtual.  
  • National Brain Tumor Society is bringing its Head to the Hill event to you this year by giving it a virtual platform, along with all other activities in May, including their annual Race for Hope – DC on May 2. 
  • Gray Matters Foundation is finding creative ways to support their brain buddies, such as making calls and sending texts to check on vulnerable patients, delivering food to their doorsteps and sending two times the number of cards to spread joy and ensure no one feels alone.

No One Fights Alone 

By raising awareness, we hope to bring attention to the critical need to find and provide effective treatment options for those impacted by a brain tumor diagnosis.   

To the brain tumor community, we know there’s a lot going on in the world right now, but we understand your needs have not diminished. Your unwavering strength and courage has always inspired us to keep fighting. For new treatments and a cure. Now is no different. Because we’re in this together. And together, we’re brain tumor tough

Be sure to follow us on social media and stay up to date on the #BrainTumorTough campaign. You can also subscribe to our newsletter where you will receive updates on all things Ivy Brain Tumor Center. 

The Author

Ivy Center

    5 Replies to “What to Know about Brain Tumor Awareness Month 2021”

    1. Jennifer Jointer
      • February 22, 2021

      How can I purchase a brain cancer tee shirt? I was diagnosed with colon cancer when I was 24, breast cancer at 40, the other breast at 44 and brain cancer July 2020.

      Reply 1 Response
      1. Ivy Center
        • February 25, 2021

        Jennifer, you are a true warrior! Unfortunately, the Brain Tumor Tough t-shirt sale has ended, but please check back. We will likely have another t-shirt fundraiser again in May for Brain Tumor Awareness Month. Stay strong!

        Reply 1 Response
        1. Linda Rozmus
          • May 21, 2021

          Be. Brain tumor tough!!!

          Reply
    2. Vikki Davister
      • May 7, 2021

      My grandson has Grade 3 Glioblastoma, He lives with my husband and me. What are the late stage symptoms? Presently he is feeling fine. He has had the tumor removed but not entirely and has gone through radiation treatments and is presently on pill form chemotherapy. We need to know what symptoms to look for as this progresses. He was told in January 2021 he had between 6-12 months. He has been participating in the Optune Program with the hope of extending his life. He is 37 yes. old. What signs should we be watching for?

      Reply 1 Response

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