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What to Know about Brain Tumor Awareness Month 2022

What is Brain Tumor Awareness Month? 

Brain Tumor Awareness Month aims at bringing together the brain tumor community to help raise awareness and shine a light on a patient population that is often overlooked.

Although brain cancer is not as common as breast or lung cancer, the need for new and innovative ways to treat brain tumor patients has never been more critical.

Research suggests that 1.4 million patients worldwide are struggling with malignant brain tumors and that by the end of the year, another 256,000 will be diagnosed with a malignant brain tumor.  

When is Brain Tumor Awareness Month?

Brain Tumor Awareness Month is nationally recognized in the United States during the month of May.

Why is Brain Tumor Awareness Month so important? 

As the current global health crisis continues to shift with the impact of COVID-19, the importance of understanding the impacts of patient care, education and cancer research is becoming more apparent than ever.  

As we look to the future, there is still much more groundwork to be done in discovering new and effective drugs for brain tumor patients, as well as a dire need for continuous education on a multitude of challenges we face when treating brain cancer. 

Brain Tumor Awareness Month is a movement that is wholly dedicated to these efforts and even in the midst of a pandemic, the need to help this patient population is still a top priority.  

How can you get involved with Brain Tumor Awareness Month? 

It’s common and reasonable to feel powerless against a disease like brain cancer. Still, there are plenty of ways to make a positive impact, especially during Brain Tumor Awareness Month. 

Naturally, the focus is on raising as much awareness as possible, understanding that many don’t know about this cancer until they or someone they love is diagnosed.

Here are a few ways you can make an impact this month:  

Spread the word 

Share information about primary brain tumors and secondary brain tumors with your peers. Tell them the stories of those affected, the harsh reality that brain cancer can impact anyone at any time, and highlight how strong and resilient those who have been burdened with this disease are because of their journey. 

Brain Tumor Facts

  • An estimated 84,170 people in the US will be diagnosed with a primary brain tumor in 2021.
  • The median survival for patients with glioblastoma, the most common primary brain tumor, is only 8 months and the five-year relative survival rate is only 7.2%.
  • The survival rate of patients with glioblastoma has not substantially improved in the last 30 years.
  • There is only one FDA-approved drug for glioblastoma with a survival benefit.

Source: Central Brain Tumor Registry of the United States (CBTRUS) 

Make a financial contribution 

Donate to non-profit organizations that conduct clinical research studies like the Ivy Center’s Phase 0 clinical trials, help support families affected by a brain tumor diagnosis through organizations like Gray Matters FoundationStudents Supporting Brain Tumor Research, StacheStrong and more.  

Support Participating Businesses

Many businesses get involved in Brain Tumor Awareness Month by donating a portion of their proceeds during the month of May to brain cancer research.

In support of Brain Tumor Awareness Month and the fight against brain cancer, restaurants have the opportunity to join our Dine & Donate program. Throughout May, restaurant participants can select a special menu item to support the cause, promote Wear Gray Day, or donate a portion of their proceeds to benefit the Ivy Brain Tumor Center and our mission to cure brain cancer.

As a strategic partner, the Hensley Beverage Company will generously match all donations gifted in May, up to $25,000, to the Ivy Brain Tumor Center. Previous participating restaurants include:

2023 restaurants to be announced soon!

If you represent a restaurant interested in participating in the 2023 Dine & Donate program, please contact Matt Wright at [email protected].

Register for an Event

Community events bring people together and provide a supportive setting for individuals who are facing similar challenges. Many of these events are designed to help raise awareness, promote unity and drive action toward discovering new and alternative therapeutic options for brain cancer.

Below are a few of the 2022 Brain Tumor Awareness Month events that you can get involved in:

  • Gray Matters Foundation’s Annual Basket Raffle:
    • The Gray Matters Foundation is the Ivy Brain Tumor Center’s official patient support partner. Gray Matters is dedicated to love, kindness, and the celebration of life. This foundation supports each patient as an individual.
    • Gray Matters will be having their annual Basket Raffle on Saturday, May 7 at 10:00 a.m. Taking place at the Hilton Phoenix Resort with the option to attend virtually, this event is the foundation’s biggest fundraiser and proceeds go toward supporting individuals who have been impacted by a brain tumor. There are three easy ways to get involved prior to the event. Click here to learn more. 
  • Head for the Cure’s 5K Walk/Run:
    • The mission of Head for the Cure is to inspire hope for the brain tumor community while simultaneously celebrating their courage, spirit and energy. Through a variety of different fundraising efforts including 5K events hosted across the country, Head for the Cure is able to support clinical research and patient programs at local brain cancer institutions. 
    • The Ivy Brain Tumor Center is the local beneficiary of the Head for the Cure 5K Phoenix. Learn how you can register for your local 5K.
  • National Brain Tumor Society’s Head to the Hill:
    • Head to the Hill is an opportunity for brain tumor advocates to come together and share their story on the Hill and advocate for the federal government to make strategic investments in brain tumor research. 
    • Taking place on Tuesday, May 3, 2022, Head to the Hill is designed to improve health care delivery, reduce health disparities, and raise the priority level for the brain tumor community’s urgent needs. Click here to learn more about this event and how to register.

Create Your Own Fundraiser 

Facebook Fundraiser

Another easy way to raise funds is by creating a Facebook Fundraiser to enlist the support of your social circle. Here’s how to do it:

  1. Go to https://www.facebook.com/fundraisers
  2. Click “Select Nonprofit”
  3. Search for Barrow Neurological Institute and hit “Enter”
  4. Fill in the details about your fundraiser and upload a custom image if you would like. Please be sure to include “Ivy Center” in the title so the funds raised are directed to the Ivy Center’s clinical trials program.
  5. Set a goal amount and hit “Create.”
  6. Share with your friends and family during the month of May.
How to Create a Facebook Fundraiser

Wear gray 

Encourage your friends, family and co-workers to dress in gray for National Wear Gray Day on May 27 or take it a step further by going gray during the entire month of May to bring awareness to brain cancer and the need for more research.  

You can also show your support by wearing a gray awareness ribbon. When you make a donation of $25 or more to the Ivy Brain Tumor Center for Brain Tumor Awareness Month we will send you a complimentary gray ribbon (as seen below) to pin to your shirt, in addition to a Barrow Brain Pen.

Take part on social media 

Engage with the brain tumor community online. Repost stories, share the hashtag #BTAM and add a Brain Tumor Awareness Month frame to your profile picture on Facebook.  

Join the #BrainTumorTough movement 

While the world is facing unprecedented times, one thing that always holds true is this community’s ability to remain tough and resilient no matter what life throws at them. So our goal in May is to spotlight individuals who represent what it means to be #BrainTumorTough. Whether it’s a patient, caregiver, doctor or nurse, we will be highlighting the many people who even in this midst of a pandemic, remain strong, never lose hope and are brain tumor tough.

Share a photo of yourself flexing with some background on your story and what makes you #BrainTumorTough. Tag us and we will share your story. 

No One Fights Alone 

By raising awareness, we hope to bring attention to the critical need to find and provide effective treatment options for those impacted by a brain tumor diagnosis.   

To the brain tumor community, we know there’s a lot going on in the world right now, but we understand your needs have not diminished. Your unwavering strength and courage has always inspired us to keep fighting. For new treatments and a cure. Now is no different. Because we’re in this together. And together, we’re brain tumor tough

Be sure to follow us on social media and stay up to date on the #BrainTumorTough campaign. You can also subscribe to our newsletter where you will receive updates on all things Ivy Brain Tumor Center. 

The Author

Ivy Center

5 Replies to “What to Know about Brain Tumor Awareness Month 2022”

  1. Jennifer Jointer
    • February 22, 2021

    How can I purchase a brain cancer tee shirt? I was diagnosed with colon cancer when I was 24, breast cancer at 40, the other breast at 44 and brain cancer July 2020.

    1 Response
    1. Ivy Center
      • February 25, 2021

      Jennifer, you are a true warrior! Unfortunately, the Brain Tumor Tough t-shirt sale has ended, but please check back. We will likely have another t-shirt fundraiser again in May for Brain Tumor Awareness Month. Stay strong!

      1 Response
      1. Linda Rozmus
        • May 21, 2021

        Be. Brain tumor tough!!!

  2. Vikki Davister
    • May 7, 2021

    My grandson has Grade 3 Glioblastoma, He lives with my husband and me. What are the late stage symptoms? Presently he is feeling fine. He has had the tumor removed but not entirely and has gone through radiation treatments and is presently on pill form chemotherapy. We need to know what symptoms to look for as this progresses. He was told in January 2021 he had between 6-12 months. He has been participating in the Optune Program with the hope of extending his life. He is 37 yes. old. What signs should we be watching for?

    1 Response

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