Patient and Caregiver Support

Men and women sitting with a support group

As part of the Ivy Brain Tumor Center’s mission to support brain tumor patients, we are expanding the services available to the local and regional community of patients and caregivers. New services will include specialized support groups, financial counseling, social work, and telemedicine consultations. Our patient navigators are experienced with the challenges that brain tumor patients face, particularly when they are participating in a clinical trial.

Arizona Brain Tumor Support Groups

Many people find that talking with others in a similar situation can help with the stress. It can also provide useful insight and refreshing perspectives.


Barrow Brain Tumor Support Group

Our Brain Tumor Support Group provides a supportive setting for open discussion. Each group is led by a peer facilitator (a survivor or a family caregiver) who understands the challenges you may be facing. Some meetings feature a guest speaker.

St. Joseph’s Hospital and Medical Center
Main Hospital Building
350 West Thomas Road
Phoenix, AZ 85013
Conference room 1 and 2 on first floor

Meets the 4th Tuesday each month
6:00 PM to 7:30 PM
DOES NOT MEET: May, November, December


Contact:

Lanette Veres:
Group facilitator
(623) 205-6446
Email


Brain Tumor Survivor and Caregiver Symposium

This is a day dedicated to bringing brain tumor survivors and their caregivers together to learn about the latest treatments, coping mechanisms, and symptoms management after brain tumor diagnosis. Attending these events is also a great way to connect with other survivors and caregivers. Topics vary from each event, which we host twice a year, once in the spring and once in the fall, on the St. Joseph’s Hospital and Medical Center campus.


Contact:

Jaclyn Garcia:
(602) 406-4429


Caregivers Support Group at Barrow

This support group provides information, resources, and help for those who care for others with illnesses or disabilities such as stroke, brain or spine injury, or brain tumor. 

Outpatient Rehabilitation Building near St. Joseph’s Hospital and Medical Center
114 West Thomas Road
Phoenix, AZ 85013

Meets the 2nd Monday each month


Contact:

(602) 406-6688


Cancer Support Community Arizona

The Cancer Support Community provides a full range of support programs at no cost for people with cancer and their loved ones in a comfortable home-like setting. It offers drop-in and ongoing support groups led by professionals. It also offers networking groups for people with specific types of cancer, educational workshops, exercise activities, stress-management sessions, lectures by experts in the field of oncology, and social gatherings—all while helping people maintain a sense of humor, joy, and hope.

360 East Palm Lane
Phoenix, AZ 85004


Contact:

(602) 712-1006

More Info:

www.cscaz.org


Barrow Connection Outreach Program

Barrow Connection is committed to enriching the lives of children and adults with neurological disabilities by facilitating health, sports, education, resources, wellness, recreation and conferences.

Individual Support


Gray Matters Foundation

The Gray Matters Foundation is the Ivy Brain Tumor Center’s official patient support partner. Gray Matters is dedicated to love, kindness, and the celebration of life. This foundation supports each patient as an individual.


Contact:

Lanette Veres:
(623) 205-6446
Email

More Info:

www.GrayMattersFoundation.org


Arizona Palliative Home Care

Home health services for adult patients who are mainly homebound.

Program benefits include:

  • Coordination of care
  • Rehabilitation therapy and services
  • Education and family caregiver support
  • Community resource referrals
  • Support from a nurse 24/7 by phone

1510 E. Flower Street
Phoenix, AZ 85014


Contact:

(602) 212-3000

Brain Tumor Organizations


American Brain Tumor Association

This nonprofit association is dedicated to support, research, and education of patients and caregivers across the U.S. Educational material is available for free on their website.


Contact:

Care Line:
1-800-886-2282

More Info:

www.abta.org


Head for the Cure

The mission of Head for the Cure is to raise awareness and funding to inspire hope for the community of brain cancer patients, their families, friends, caregivers and other supporters, while celebrating their courage, spirit and energy. They accomplish this by hosting a series of 5K runs/walks and other events to raise funding in support of brain cancer research benefiting local beneficiaries and their national beneficiary, The Brain Tumor Trials Collaborative (BTTC). Head for the Cure is a registered 501(c)3 organization.


National Brain Tumor Society

National Brain Tumor Society is the largest, most influential nonprofit that is fiercely committed to finding better treatments and driving rapid progress toward a cure for brain tumors. They drive a multifaceted approach to aggressively influence and fund strategic and collaborative research, and advocate for public policies in order to achieve the greatest impact, results and progress. Education material can be downloaded from their website free of charge.


More Info:

www.braintumor.org

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